Skyclarys was approved for reimbursement on 25 August. It has been a very challenging period for our patients with Friedreich’s ataxia, FA, and their families. If services in Tallaght University Hospital remain unchanged, some FA patients could have to wait until June 2028 to get the Skyclarys prescribed. This is simply unacceptable. Services have been underfunded for years. Patients should be seen yearly but some are waiting two and a half years. What work has been done since 25 August to ensure there is a timely …

I am sorry for that but we are a little bit frustrated.

How many patients will have it on 2 October?

In little over a week we will mark the beginning of cancer awareness month. This should be a time when we can talk about the great progress being made in fighting cancer across the State. While progress is being made in some areas, which is positive and should be strongly welcomed, the national target for mammograms has been missed for a third consecutive year, and not by any small amount; it has been missed by 46,000. That is 46,000 women who should have been scanned. While the numbers of those being scanned are r…

I know a woman in my community who found a lump. She went to her GP straight away. She did everything right. She got her referral for an appointment but had to wait seven weeks to be seen, only to be told then that she needed an urgent ultrasound and a mammogram but would have to wait three to four months. This was despite the presence of the lump and a history of breast cancer in her family. Her own sister had it at 36. That should be setting off alarm bells. Four months later, she got her scan and a biopsy and re…

Nobody wants to talk about it. I sense it.

She knows about it. She has her email. Nobody is answering me.

Yesterday, when I was in Kilkenny city the price of diesel was a staggering €2.16 a litre. These prices are crippling ordinary people right across the State. The rising cost of fuel has a knock-on effect on nearly every aspect of our lives, be it getting to work, taking the kids to school, driving them to training or simply doing the weekly shopping. Ordinary people are being squeezed tighter and tighter. We need to call out the double standards at play by Fianna Fáil and Fine Gael. When the bankers wanted a break,…

That was there on the 21st.

It was the 21st.

I welcome the chance to speak about the fiscal impact of the long-overdue reunification of Ireland. I also welcome the Tánaiste's speech. It is a pity that more people in the House did not speak up in the same way. For too long a false narrative has been published by those who oppose reunification. Whether in politics or the media, they have used their position of power to scare people off the idea but these are the same people who never cared about the people of the North or those in the Border communities that we…

I strongly welcome the introduction of the domestic violence register and fully support this Bill. It is encouraging to see cross-party support for its introduction, which is a clear sign that this issue crosses all political divides and demands action. The reality is that domestic violence is seldom a one-off incident. If it happens once, it will happen again. That is precisely why a documented history of domestic violence is so crucial. The register will apply to individuals convicted of domestic violence against…

I, too, would like to welcome Cian and Jordan and thank them for everything they have done. They have captured the hearts of everybody. When they were in Kilkenny, the size of the crowd spoke for itself. Well done. It is all in aid of dementia awareness and research. The crowd that turned out for them in Carlow and Kilkenny just speaks a thousand words. Very few of us do not know somebody living with dementia or a family grappling with the daily challenges of caring for a loved one with the condition. Everyday task…

I acknowledge Kilkenny city has bucked the trend and is operating a full staff complement, which is great to see. However, it is a completely different story in south Kilkenny. The team serving Ferrybank, south Kilkenny and Waterford north city has a vacancy rate of 52%. Over half its posts remain unfilled. That is a massive failing for children across these communities. To make matters worse, the planned closure of Carlow College, which provided so many social care courses in the area, is another serious blow to t…

I thank the Minister of State for her response. While I welcome that there is progress being made, the harsh reality of this is that much of the progress is moving at a snail's pace. Over 2,100 children across the region I live in are on a CDNT waiting list. Almost 1,600 of those children having been on a waiting list for over 12 months. This number just compounds how slow progress is being made. Every day that a child in need is missing out on vital care is causing harm. It is as simple as that, so we need to see …

This issue is deeply close to me. For almost 20 years, I worked as a carer for older adults with disabilities. It was always so much more than just a job. In that role, I made life-long friendships with people I supported. To help them live their best life, independently and with dignity, meant so much to me. The harsh reality today is that the State is increasingly failing people with disabilities and their families. We have all sat across from parents in their 60s, 70s and even 80s who are still the primary carer…

A month ago, a group of people living with Friedreich's ataxia, along with their families, were present in the Dáil as the urgently needed drug Skyclarys was being discussed on Leaders' Questions. It is important to acknowledge the hurt the Taoiseach caused that day when he gave incorrect reasons for why the drug was not on the agenda at the last HSE drugs committee meeting. The group will make the journey to the Dáil again next Tuesday. Will the Taoiseach and Minister make the time to meet with them? Will the drug…

It was the dates you gave.

It is now clear that as a result of the climate crisis, we are entering an era of more extreme weather in every sense. Summers are growing relentlessly hotter followed by winters of torrential rain. Earlier this year, we saw first hand the devastating damage from floods across Carlow and Kilkenny. In response to the extreme weather, the EU moved to provide emergency support for farmers who suffered significant damage from adverse climate conditions - €56 million in aid in total. Portugal, due to crop damage from he…

I commend my colleague, Deputy Cullinane, for his work on this motion. The numbers speak for themselves. Over 11,000 people, the vast majority of them children, are left suffering on dental treatment waiting lists across the country. The State is failing them, plain and simple, yet what do we see from Fianna Fáil and Fine Gael? The same attempt to normalise these shocking delays, just as they have done with the disastrous waiting list for the children seeking an assessment of need. These waiting lists are not just …