I recently had the privilege of meeting representatives of SMA Ireland in the audiovisual room. Spinal muscular atrophy, SMA, is a rare condition that causes weakness throughout the body. People living with SMA can experience difficulties swallowing, breathing and performing basic day-to-day activities. In recent years, the HSE has approved three treatments that can halt the progression of this condition and significantly improve an individual's quality of life. Unfortunately, these treatments are unavailable to th…