Today, there is going to be a meeting of the HSE drugs group with those living with Friedreich's ataxia and their families, who have travelled to Dublin. They are desperate for Skyclarys to be made available on the scheme. The drug is the only one that can slow down the cruel and debilitating disease that is Friedreich's ataxia. I have spoken on this before. I hope today brings an end to the fight of these families for access to the much-needed drug. I also raise the issue of legal aid. We are confronted yet again …